Cystic Fibrosis
Cystic fibrosis (CF) is a progressive, genetic disease that affects multiple organ systems. Primarily CF causes persistent lung infections and therefore the treatment focus is on prevention of exacerbations and maintenance of good lung health.
Cystic Fibrosis Program at Children's Hospital and London Health Sciences Centre
Due to the complexity, there are many members of the CF care team involved in patient management, including:
- Tracy Gooyers, Nurse
- Robyn Harper, Dietician
- Stefan Branov, Social Worker
- Maciej Prajs, Physiotherapis
The CF program cares for people with CF and includes two separate clinics serving the paediatric and adult populations.
The adult clinic is held on almost every Tuesday at the Victoria Hospital campus, and serves as a transition from the Paediatric CF clinic, in addition to those new diagnosis in adulthood.
The CF program at LHSC also provides an outreach clinic in Sault Ste. Marie. Health care professionals from Children's Hospital travel to this clinic three times per year to provide care to children and adults with CF.
The clinic cares for over 116 individuals, of which 12 are post lung transplant, 11 are currently referred to the lung transplant program in Toronto, and 30 are on gene modulator therapy.
